14 months Steroids Free

Hubby told me that there were many people who came to this blog while searching for information regarding eczema. He said that I should probably update little man’s progress more often as it might be helpful to others.

Often, I hesitated posting about little man’s skin progress as I do not want that to be the main focus our lives. This is especially so for little man. It is definitely unfortunate that this has to happen to little man who has never ever gotten eczema before, but other than that, there are greater and happier things happening in his life that we want to focus on. Although his condition has always been on my mind and in my prayers, I hide this concern at a corner of my heart and tried very hard not to make it an issue for him. He is still a positive and happy child despite what happened, and that is the way it should be.

Another reason why I did not post every single trial we went through while trying to find a “cure”, is that we actually went through a lot. Just going through all those trials, anticipation, disappointment and all sorts of emotions are tiring enough, I sometimes do not even want to relive them. I want to spend my remaining energy to find something that works for my little boy. What doesn’t work, doesn’t matter. I just want to move on. However, if these information can be helpful to anyone at all, I will try to update more often. This is a tough journey and we wouldn’t have come so far if we have not come across people who went through it and are willing to share their experiences in dealing with it.

First of all, I changed the tag from “Eczema” to “Eczema/Topical Steroid Withdrawal (TSW)”. Little man is not suffering from eczema. He never has been. His condition is caused by a strong steroid prescription by a pediatrician. You can read more about it here.

The last I updated here, we were still with a naturopath at City Osteopathy. At the recommendation of my brother-in-law, we decided to stop seeing her for a while and tried the TCM physician who managed to help improve his son eczema. Having seen his skin improvement, we decided to give it a try. We are also hoping that the physician can help to strengthen little man’s immune system as he was getting sick every month.

In mid-March, we started to see him. The physician is an experienced, kind man whom I would describe as 医者仁心. From the way he treated little man, we can feel that he truly sincerely hope for little man to get well. Unfortunately, little man’s skin did not agree with his treatment. It started to flare up and go back to square one after seeing him for more than a month. I was devastated, even though I know it is a risk we have to take when trying to see if something works. However, one good thing that comes out of his treatment is that little man seems to become stronger in immunity. When he did not fall sick for the 2nd month, hubby and I were so happy.

We figured out the few herbs he prescribed that are meant to improve immunity and do not cause any reaction to little man’s skin, and tried to tweak the remedy in hope to continue his strong immunity. Sadly, before anything is tried, he fell sick again.

Since this TCM physician is not able do anything for little man, I started searching for other ways. Coincidentally, I developed PUPPP during this period. It was extremely itchy and uncomfortable. Hence I decided to see this new naturopath from Back2Life who is highly-raved about in a nutritional and health FB group. Let me be the guinea pig this time, I thought to myself. Instead of letting little man go through the trial again, I wanted to try for myself if this naturopath is really that good. And so the story goes, she managed to treat my PUPPP within 2 weeks and has been treating little man’s skin since early May.

I wouldn’t say we are coming to the end of the journey, but little man has been getting much better after receiving her treatment. Below are some photos for my own reference. They do not reflect the exact condition of his skin as it can fluctuate depending on many factors, but they are good enough to remind us that we have come very far and should not lose hope.

3rd April 2016

4th May 2016

16th May 2016

25th May 2016

5th June 2016

6th August 2016

These photos do not show the true journey we have been through. There are many times my heart is just too weak to even have a proper look at little man’s foot, less to say take photos of it. Out of sight out of mind. It works the same way. However, no matter how bad it is, I force myself to examine his skin condition every single day to make sure that I am up to date with his skin progress. Still, there were many times I am still not strong enough to take photos of it.

I wish that no one has to go through what we went through. If unfortunately you are currently, do know that you are not alone. Hugs, and God bless.

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